Consumer Assessment
A set of
interview questions were developed to evaluate the internet usage by the participants
and the role it played in their healthcare involvement. Ten people were interviewed, none of which were healthcare
professionals. Their ages ranged from 26-75.
Of those, the group was evenly made up of males and females. The
interview questions were emailed to the participants, with 100% completion by
all interviewees.
The
interview questions were used to gain more insight into how much the
participants used the Internet, if they used it to locate health information,
and determine how the internet contributed to their interactions with their
healthcare provider. For more
information on the analysis of the interview, please refer to Table 1. For more
information on participant demographics, please refer to Table 2. Participant
responses for each question are summarized below:
Question 1: How often do you use the internet?
There were
two responses that were provided for this question. Participants reported using
the internet every day, or every other day. Nine out of ten people use the internet every
day, while one person reported using the internet every other day.
Question 2: Do you use the internet to find answers to
health questions?
Nine out of
ten people answered yes, they do use
the internet every day, while one person answered no. The nine participants
that answered yes, all reported that
they search for general information on symptoms and medications. Six out of ten
participants (60%) reported that searched the internet for health information
prior to seeing the doctor. The reasons
for searching the internet prior to
seeing the doctor fell into three categories: to find information on
symptoms (100%), find treatment suggestions (20%), and search for physician and
their ratings on the internet (30%).
Question 3: Do you share the information you found on the
internet with your doctor?
Out of the
ten participants, six (60%) had reported that they discussed information found
on the internet with their healthcare provider.
The four participants who did not share information they found on the
internet indicated that they did not share health information with their
healthcare provider because they are confident in their healthcare provider’s
care and did not feel the need contribute their internet findings. The six participants that reported they did
share information and received a positive response. They reported that they had a collaborative
relationship with their healthcare provider and felt comfortable discussing
questions and internet findings.
Question 4: Purpose for searching the internet for
information after seeing the healthcare provider?
Six
participants (60%) reported that they searched the internet after seeing their
healthcare provider. Reasons for
searching the internet fell into three categories. Three participants (50%) reported searching
the internet to find further information on a prescribed medication. One participant (16.6%) reported searching the
internet for more information to clarify what they were told by their
healthcare provider. Two participants
(33%) reported searching the internet to verify the information they were
given.
Question 5: What is the level of your participation do you
have with your healthcare provider in developing a treatment plan?
The
participant’s answers fell into three categories. Four out of ten participants reported that the
provider independently makes the treatment plan. Four out of ten participants reported that they
work collaboratively with the provider to develop a treatment plan. Two
participants (20%) reported that they made the treatment plan and asked the
healthcare provider for their opinion.
Question 6: Do you use electronic communication to
communicate with your healthcare provider?
All
participants (100%) reported that they did not use any form of electronic
communication to communicate with their healthcare provider. Participants indicated that they were not
aware that it was possible to communicate electronically with their providers,
or they were not aware of a how to do this.
Question 7: Do you utilize an electronic health portal
to help to manage your health such as viewing your lab results, diagnostic
results, or the summary of your visit with your healthcare provider?
All participants (100%) reported that they did not use any form of electronic
health portal. Only three participants (30%) knew about electronic health
portals. Although, they reported that no
one had fully explained what the electronic health portal was, they were not
aware of any of its benefits, and did not feel that they needed one.
Discussion
The results of the interviews revealed
that all participant frequently use the internet. Except for the oldest female
participant who was 75 years old, all participants used the internet every day.
While 90% of all participants use the
internet to search for health-related information, collaboration with the
healthcare provider remains low for all age participants. An equal number of participants do not participate
in the care plan as those that work collaboratively with the healthcare
provider. Age ranges and gender were
evenly distributed across both categories.
Although, all participants were Caucasian men and women, and therefore
results could not be applied to a more diverse population.
Lessons Learned
Lewis, et al. (2005) defines a
health information consumer (HIC) as an individual who looks for health
information such as health management information, disease prevention, and
treatment options. Dr. Ferguson further divides
the health information consumers into specific levels. A health information consumer at level 1
encompasses all of the consumers that search the internet for health
information. They search for information
for themselves, as well as friends, or family.
At the higher levels of 6 through 10, health information consumers are
utilizing resources such as their electronic health records and communicate
with health care providers electronically to ask questions and manage their
health (Lewis, et al., 2005).
My interview of ten participants,
with ages ranging from 26 to 76 years old, revealed frequent use of the
internet by all participants.
Additionally, all participants indicated that they utilize the internet
to find healthcare information. According
to Lewis et al. (2005), all participants of the interview are considered level
one health information consumers. However,
despite the regular use of the internet to investigate health care questions
and find healthcare resources, the interview responses revealed that participants
were not utilizing electronic resources such as an electronic health record or
electronic communication tools to help manage their healthcare. All participants reported that they were
either not aware of these tools or were not aware of the benefits (Lewis et
al., 2005).
Having access to healthcare
information and electronic health records provides people with the knowledge to
manage their own health care needs confidently and accomplish their healthcare
goals. Lewis et al. (2005) defines this
concept as empowered consumers. She points out that many of the consumer
heath informatics (CHI) resources that are being used are not integrated with
the tools used by healthcare providers and healthcare organizations. This lack of collaboration is ultimately
taking away from the empowerment of the consumer (Lewis et al., 2005)
In the video by the U.S. Department
of Health and Human Services (USDHHS, 2012), Dr. Farzad Mostashari National
Coordinator for Health IT, points out that healthcare providers are not
adequately educating their patients on the electronic resources and the tools
available to them. Studies, evaluating
the meaningful use of healthcare organization revealed that many healthcare
organizations reported having meaningful use. However, not even one patient of those
organizations had been given access to their electronic health records. Healthcare organizations reports that this
was because patients had not asked for access. Dr. Mostashari and Lygeia Ricciardi, acting
director, Office of Consumer eHealth, explain that in stage II of meaningful
use, healthcare organizations and providers are being held accountable for
encouraging their patients to use of their electronic health records and making
them aware of all the benefits (USDHHS, 2012).
The results of my interview
revealed to me that despite their frequent use of the internet, none of the
participants were not
fully empowered and informed consumers.
There is still a need for nurses and healthcare professionals to find
ways to educate our patients on the electronic tools that support their
health. We need to continue to find
innovative ways to provide them with the knowledge and confidence to be an
empowered health information consumer (Campbell, 2005).
How often do you use the internet?
|
|
Daily
|
90%
|
Weekly
|
0%
|
Monthly
|
0%
|
Other
– Every other Day
|
10%
|
Do you use the internet to find answers
to health questions?
|
|
Yes?
|
90%
|
No?
|
10%
|
If yes, what websites would you generally
use to search for answers to your healthcare questions?
|
|
Search
engine (google.com)
|
40%
|
WebMD
|
60%
|
Have you seen a healthcare provider in
the past 6 months?
|
|
Yes?
|
100%
|
No?
|
0%
|
How often do you search the internet for
healthcare information prior to seeing your healthcare provider?
|
|
0%
of the time
|
30%
|
5%
of the time
|
10%
|
10%
of the time
|
10%
|
55%
of the time
|
10%
|
80%
of the time
|
20%
|
90%
of the time
|
10%
|
100%
of the time
|
10%
|
How often do you search the internet after
seeing your healthcare provider?
|
|
0%
of the time
|
20%
|
10%
of the time
|
10%
|
20%
of the time
|
40%
|
50%
of the time
|
10%
|
90%
of the time
|
10%
|
100%
of the time
|
10%
|
Do you use
electronic communication to communicate with your healthcare provider?
|
|
Yes?
|
0%
|
No?
|
100%
|
Do you utilize an electronic health
portal?
|
|
Yes?
|
0%
|
No?
|
100%
|
Who makes the treatment plan?
|
|
Provider
makes the decisions?
|
40%
|
Work
collaboratively with provider to develop a treatment plan?
|
40%
|
You
make the decisions and ask your provider for their opinion
|
20%
|
Table 2. Participant Demographic
Details
Female Ages
|
Male Ages
|
26
|
28
|
30
|
36
|
40
|
40
|
64
|
50
|
75
|
65
|
References
Campbell,
R.J. (2005). Consumer informatics: Elderly persons and the
internet. Retrieve from: https://docs.google.com/document/d/1hy8WLLRUMyaEhSV_uLPxPenU2LHkNEQbiSmFfvEAV2E/edit#
Lewis, D., Eysenbach, G., Kukafka, R., Stavri, P, and
Jimison, H. (2005). Consumer Health Informatics: Informing Consumers and
Improving Health Care. Secaucus, NJ: Springer.
U.S. Department of Health and Human Services (USDHHS,
2012, September 12). ONC's strategy for engaging consumers - 2012 consumer
health IT summit. [Video file]. Retrieved April 07, 2017, from https://www.youtube.com/watch?v=81SBwCENKnA
Hi Barbara,
ReplyDeleteI enjoyed reading your blog and analysis of the data you have received during the interview. You have mentioned important fact that all participants were not utilizing electronic resources, such as electronic health record, to help manage their healthcare. The participants did not have knowledge of where to find or how to use those resources. I have received similar results. One of interviewees, 78 years old, mentioned during the interview that sometimes she feels like she is unschooled even though she has a postgraduate degree. She knows that there is some information because other people are talking about that, she knows that potentially she can access it because her doctor has mentioned about that when they were moving to electronic system, but she has no idea how to find that information or how to use it. She does not have anyone close to her who would ‘walk her’ through the process of finding it. This example and the data you have provided in your analysis confirm that healthcare organizations need to adjust their approaches to meet the needs of older adults who are not able to keep up with information technology on their own. Health care providers need to incorporate patient portal information and instructions how for finding it into phone conversations and face-to-face contact (Irizarry at al, 2017).
Irizarry T., Shoemake J., Nilsen ML., Czaja S., Beach S., DeVito Dabbs A. (2017). Patient Portal as a Tool of Health Care Engagement: A Mixed-Method Study of Older Adults With Varying Levels of Health Literacy and Prior Patient Portal Use. Retrieved from: https://www.ncbi.nlm.nih.gov/pubmed/28360022.